Faces of ALS - Trickett's Story

With the excitement of last year's Ice Bucket Challenge, it is difficult not to think of the celebrities, like Lady Gaga and Jimmy Kimmel, dowsing themselves in ice cold water. We often forget about those who are really impacted about ALS. ALS does not discriminate. It impacts every gender, every race, every age, and every sexual orientation. It doesn't care if you are white or black. Gay or straight. It mercilessly attacks through generations of family members and at random. This is Trickett Wendler. Trickett was 39 years old when she was diagnosed with ALS. Along with the support of her three daughters and husband, Tim, she established what most of us could only every dream about --- the Fewell to Fight ALS Organization. The Fewell Organization helped to raise ALS awareness and money to be used in finding a cure for ALS. Sadly, Trickett passed away this Wednesday (March 18th), just shy of her 40th birthday. She was surrounded by her loving family and friends. When asked what people could do for her, Trickett said "keep fighting."

Click to Listen to Trickett's Story.

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The PALS First Campaign - "I Can't Wait" is now on Facebook. You can follow our newsfeed for up-to-date information about ALS research, ALS treatments, ALS news, and news about our Expanded Access Program for ALS treatments petition. Click the link to go to our facebook site: PALS First - "I Can't Wait"

PALS First Campaign Petition Update-Only You Can Make this Work!

 

Sign to support treatment for ALS Patients: Group Expanded Access Programs

www.change.org 

Step 1. Sign the petition with at least your name, city, state/country, and zip/postal code.

Step 2. Forward this petition to your network via email, Facebook, Twitter or other social media.

Step 3. Visit "I Can't Wait" -PALS First Campaign Blog.

When the petition first started in January 2015 our focus was on getting people with late-stage ALS access to the promising new patient-derived bone-marrow stem cell therapy, NurOwn (BrainStorm Cell Therapeutics, Ltd), which is currently wrapping up Phase 2 clinical trials in the United States. We realized that there are several other pharmaceuticals and therapies that could be made available to people living with ALS. More options means more people can receive these promising life-saving treatments.

Recently we updated the petition to include more pharmaceutical/treatment companies. We also simplified the petition adding a 3-Step Process for Success. As of March 8, We have received 3,042 Petition Signatures from across the United States, Canada, Mexico, South America, South Africa, Norway, Japan, China, India, Spain, Portugal. Our goal is to get at least 100,000 Signatures.
 

Expanded Access Programs allow people living with ALS who do not qualify for clinical trials to receive potentially life-saving therapies. This is not a pie in the sky dream. Expanded Access Programs ARE possible, but only with your help. People with ALS, their caregivers, friends, family and community members are all affected by this disease. It is up to all of us to make Expanded Access Programs a reality.

What you can do:

• Sign this petition (name, city, state/country, and zip/postal code).
• Speak with people one-on-one about the I Can't Wait PALS First Campaign.  Tell your family members, friends, faith-based and community organizations.  
• Post the petition and blog on your FaceBook and tell your contacts to re-post.
• Tweet the petition and blog on your Twitter Account using the hashtags #ICantWait #ALSCure #StrikeOutALS #IceBucketChallenge  
• Send your ALS story to fight4PALS@gmail.com