ALL #PALS
and #CALS, the most important thing you can do this weekend is use your FB,
Twitter and other social media accounts to raise money for ALS research and
treatment. We only have a few days left
in August to make some noise. Reach out
to your favorite celebrities and spread the word to all #PALS, #CALS, and
advocates to do the same!
ALSTDI says
donations for #IceBucketChallenge are down 98% from last year. We need to keep private donations at the same
level or higher than last year in order to continue to make headway towards a
cure for #ALS. There are a few more days
left in August and the video craze may unfortunately have lost celebrity
interest. PALSFirst would like to post
the names of those celebrities who donated money, an incentive for them to show
us how wonderful they are!
This Weekend
(AUGUST 28-31), please use your FB and Twitter Accounts to challenge your
favorite celebrities (actors, musicians, athletes, etc.) to donate at least $5
towards critical research and treatment.
There are of course multiple organizations in need of funds so feel free
to tweet in favor of the organization of your choice. #PALSFirst supports #ALSTDI because all
donations goes towards research including their #PrecisionMedicine program and
#ALSETF because they are working with industry to get #ExpandedAccess Programs,
which will allow #PALS not qualifying for #clinicaltrials to get access to
experimental drugs and treatments.
Here are two
suggested tweets:
#IceBucketChallenge $
LOW, Plz [@celebrityname]
donate $5 to @ALSTDI @ALSETF for critical #ALS research
& treatment for dying #PALS, RT
[@celebrityname] if donated $5 or more to @ALSTDI @ALSETF for #ALS, plz RT so @PALSFirst
can congratulate your caring & awesomeness!
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