Friday, April 17, 2015

What ALS Can Learn from the Cancer Experience: Introduction

It was 1969 and President Nixon declared a War on Cancer.  Despite being in the midst of a recession caused by the Vietnam War, billions of dollars were poured into cancer research and a new era in cancer’s history started.  Cancer was once a disease scientists knew little about, a disease no one wanted to discuss became a national priority.

This change didn’t come about suddenly.  As a field of science it has span time in memoriam, from early Egyptian papyrus that documented some of the earliest cases of breast cancer, to the invention of early treatments such as the radical mastectomy and radiation therapy of the 1890s, to the diverse chemotherapies, hormone therapy and immune therapy of today.  This success story has multiple heroes.  First there were the dedicated scientists with an insatiable appetite for discovery, conviction to eliminate human suffering, and defiance against the status quo.  Next on the scene were the entrepreneurs and visionaries that spearheaded private and public funding efforts, followed by American citizens who both suffered from the disease and watched their friends and family members die of the disease until a boiling point was reached and they said ‘We’re not going to take it anymore.”

The history, science, medicine, and politics of cancer were beautifully summarized in Siddhartha Mukherjee’s book, The Emperor of all Maladies: A Biography of Cancer, recently turned into a PBS documentary film by Director Ken Burns.  Most striking about this film is the parallels to other major diseases and public health funded projects in U.S. history; parallels that the ALS/MND Community can learn from and apply to advance ALS science, treatments, and access to experimental drugs and therapies outside of clinical trials.  


This post is one of a five part series on lessons learned from The Cancer Experience:

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